What Am I Allergic To

Wishing you all A Lovely Christmas time and a very happy and healthy New Year !

Whew! The hot dry weather we have been having has not really agreed with my skin. It has dried out much faster and wen it gets dry it gets sore. As its been sooo hot I have felt like I have needed two cool baths a day- this has helped with the soreness but need to be very careful not to increase the dryness.  So I have been keeping well hydrated by drinking lots of water and applying moisturiser. I have also stayed well out of the sun and the heat whenever possible.  Luckily our patio area is in shade for most of the day after about 11am. I used to think this was a negative but now it is an absolute positive !  So I can still sit outside with friends and enjoy the garden not being in the sun!  Currently wearing at least two light layers of clothing so that any sun cannot hopefully get through. I also have a shawl that has an inbuilt sun protection factor of 50 which is just perfect for wrapping up in and not getting hot while being protected. I wear a big hat...

According to The Daily Mail Doctors are calling for a ban on the use of this preservative methylisothiazolinone . If that is the case it is in my opinion a GOOD move!  This is one of the preservatives that I am allergic to and it is increasingly being used in so many products-skincare, shampoo, wet wipes etc. It does increase shelf life so you can see why it is attractive to manufacturers and also don't we as consumers love a long shelf life on our products...  However, with an increasing number of people suffering skin rashes, scaling skin, and eczema/dermatitis it does not seem to be a good way to go..... I know for me I have to avoid anything that has  Methylisothiazolinone   within it and that really cuts down what is available to me to use.  Watch this short video to see what a diagnosis of allergic to  methylisothiazolinone means for us.    http://www.dailymail.co.uk/health/article-2357697/Doctors-ban-face-cream-chemical-b...

My next mission was to find products I CAN use. I trawled the shops in our high street and well it difficult. I checked skincare, haircare and basic household products ad could not find anything that was suitable for me with the allergies Next, I tried the internet. I basically went about it this way. First, I tried the brands I knew, brands my friends used and then did a search for skin-friendly products under various search terms.  This took a long time.... even when I found the brands often, surprisingly often there were NO ingredient listings! On some, there seemed to be partial listings and a very few actually did list the full ingredients. So with many could not tell if it would be Ok for me or not.  I decided that the only way I could be sure would be to contact each manufacturer and ask them if the product would be any good for me. So I composed a letter and emailed it out to probably over 30 companies.  I have to say most were very helpful, some assigned a...

Ok so I left the dermatologist with my three sheets of information about the allergens I was allergic to and I knew what to avoid.  The sheets were very detailed and useful and also gave the other chemical names of the allergens so i knew what I had to check on every product. It was very clear and excellent information.  What Can I Use For Skincare?  When we got home we checked all my skincare, haircare and body care- not one product was any good for me- believe it or not, every one of them contained an allergen!!! So they all went into a bin liner to be given away. Next, we checked the household products- things like washing up liquid, furniture polish, bath cleaner, kitchen cleaner- again Not one I can use- allergic to them all!! Then the washing liquids and conditioner we used for clothes- Nope I cannot use that either !! We ended up over the course of two days with a massive sack of pretty much useless products. We decided to give them all away..... No wo...

I really didn't expect much at this point. I mean how could I be allergic to anything. I had never in my life before been allergic to anything! I met with the dermatologist. I have to say the staff at the hospital who did the skin patch allergy testing were absolutely wonderful! They were calm, chatty , friendly and helpful. The nurses were just great and the doctor was very understanding. I knew from the Wednesday check up when they removed the patches that had been put on, on the Monday that there had been 3 reactions...  They intensified over the next day or two and by Friday I had 3 nice red welts or as they put it 3 "good" reactions! You can see them in the photo. So it was easy to tell what I was in fact allergic to. The dermatologist explained everything and gave me 3 sheets with the allergens on them and essentially told me to completely avoid ALL the allergens for the rest of my life. She said it would mean quite a lifestyle change.... I was initial...

Early January and back to the dermatologist. I saw a different one and he said that he was so surprised my skin was still red, sore  and inflamed and that it was time we got a deeper look and he ordered Skin Patch Allergy testing.  He suspected an allergy to something and it was clear by now that it was not to the sun!  So next step skin allergy patch testing! Have to say I wasn't thrilled by this but after talking to my own GP I realised that at this stage and with my skin still pretty sore it would at least determine if I was allergic to any chemicals etc so it would be better to have it. 

As time went by I was finding it more difficult to maintain a positive attitude to my skin condition. I got down then made myself get up again emotionally. I knew however that I could not let this thing beat me!  I had been dealing with this now since June and it was now November. I was due to see the Dermatologist again in very early January.  I had to turn down party invitations, meals out, Christmas plays, theatre trips. I could not cope in anywhere that was hot or even warm. My skin looked and still felt awful. Christmas was a dismal affair, I felt tired out and drained and just fed up with the whole thing really.  This was all on top of  6 months of pain, blistering, sore red skin and missing out on the summer, being unable to drive for a long time, unable to visit anywhere or anyone as my skin had been scaling off and flaking everywhere. Even if it hadn't been sore etc i would have been so embarrassed to be out like that.  My doctor had done his bes...

The blood test was soon after my visit to the dermatologist. As you can see in the photograph, the skin on my arms was so bad still inflamed and sore and angry and weeping in places too and cracked it was impossible to take blood from my arm in the usual place. So it had to come out of my hand.  I had not been too bothered by Blood tests in the past but in the hand was sooo painful for me. The nurse was great but there was still just a lot of pain and I was glad when it was over.  Little did I know at that point that I would need several more Blood Tests in my hand but anyway...I was glad it was over for now.  The results came back quickly and Fantastic I DID NOT have Lupus! I was overjoyed at this point , at least one of my worries was over. However it was short-lived as I was not getting any better. I stayed out of the sun, I applied the strong potent steroid creams, I used the emollients, I bathed in the prescription bath lotion.  However, there was mi...

With a possible diagnosis of Lupus and a possible diagnosis of sun allergy and photosensitivity hanging over me, clearly, the last thing I needed was to be in the sunshine.  So even though it was the middle of summer at this point I avoided the sun. I kept indoors often with the blinds down as any heat or sun would make my skin sore and hurting. It was pretty miserable! If I went out I covered up as much as possible. I hated being warm anyway at this point. I wanted cool breezes, rain and clouds! I missed the summer really altogether!  I did get quite down at this point as I thought IF I was really allergic to the sun how would I live life and what restrictions would it bring.  I am an outdoor type person and love walking and being outside in the countryside, gardening etc and I was not happy thinking that I would not be able to do that. So I needed to find out more about sun allergy and how to handle it.  So I spent time reading and learning and waited for t...

Being the person I am I just had to know more about my possible risk of this skin condition being Lupus. So I researched and read and found out as much as I could.  I went for the blood test and I told my Doctor I was worried about maybe having Lupus.  He was reassuring and said it was unlikely in my case as I was not exhibiting several of the main symptoms...but a simple blood test would help us to confirm or not. He gave me a brief summary of what the condition of Lupus is and what it means anyway. So the links below are the ones I found most useful for discovering about Lupus and help available. http://www.lupusuk.org.uk/

OK so I was waiting to see the dermatologist. In the waiting room were so many people with skin conditions, even little children. I had no idea before that so many people had so many skin issues.  I was doing my best to hide my own skin as I thought it looked horrible, yet it was so sore and itchy and inflamed I didn't really want any clothing on it. You can see my skin in the photograph above.  Being dressed for me was simply agony.... When I saw the dermatologist she took a history then asked me to undress to my underwear so she could examine all my skin. This took a little time  and afterwards she came back with a diagnosis. She said I had severe sunburn! I was quite shocked by this as although we had been on holiday I had covered up, worn a factor 50 suncream, not sunbathed, and worn a hat so I really thought I had been very careful.... Anyway so in a bit of a daze i was directed how to use a steroid cream - a potent one to relieve the irritation and the inflammat...

The rashes spread up onto my neck and chest and maybe because the skin is so delicate in that area it became very painful, so painful that I had to get more painkillers from the Dr.  This pain was scary  Then one day it all really flared up and my husband rang the Dr who prescribed a spray to help me with the itching and pain. The spray worked quite well.  I went to see the Dr again and we both agreed I needed to have a referral to a dermatologist.  The rash had started mid June and it was now nearly September. I was unable to work, unable to do much really as my arms, neck and chest were either irritated, sore, itchy, or downright painful.  Sleep was only possible with the antihistamines and  I was ready, so ready for this to end....my doctors had done everything to help me but the rash was not going away....

If I could have spent this time totally in a cool bath I would have! I hated these scabs! I knew they were a good sign and I knew they were protecting the delicate skin underneath but they were so hard, so ugly and I wanted to be rid of them! Well, they did start gradually dropping off- usually in the bath but occasionally on the sofa or in the bed!! Yuck! We were changing the bed every day and keeping sheets on the sofa to catch the scabs! Well, it wasn't pretty but it was a necessary part of healing- there were just sooo many of them - all up my arms. I cannot recall how long it took all the scabs to fall off but it took a while. My arms were very stiff and sore and the itching and irritation were terrible so I stayed on the meds. I stopped the steroid tablets though as Doctor only wanted me on a very short course. I struggled to wear any clothes - I could not wear anything on my arms at all and had to cut up clothes so they were without arms. I felt awful and must have loo...

I rang the doctor surgery the next morning, it was a Monday and typically there were no appointments left. The receptionist asked if I needed to see a doctor urgently- hmmm I thought well no I am not bleeding or having breathing issues so No - but I said maybe I need to see someone- so she booked me in with a nurse for half an hour later. Thank goodness our doctor is close by as the walk there was a nightmare, my arms felt heavy and the blisters were now filled with a weird fluid.  I went in to see the nurse who took one look at my arms and said you need to see a Dr today - now! She said she thought it was infected and that I would need antibiotics. she didn't really want me to leave the surgery and sorted it out for me to see the Dr as soon as he had a gap. I went in to see our doctor, I had seen him before and he is a very calm, measured doctor, nice and professional. However, I saw the look on his face when he saw my arms and knew he was shocked at what he saw.  I r...

So how did it all start? Well, we were on holiday in a wonderful sunny climate and I was diligent as usual about wearing sunscreen and keeping covered up and in the shade. I am very pale-skinned and I can't take much sun so I am very careful.   We had a great holiday, sightseeing, resting, relaxing, a quality much needed time. On the day before we were due to fly back I noticed a small bumpy rash on my left forearm... it was a bit sore and a little itchy but nothing to worry about much.  To be cautious I went to the local chemist who thought it was a heat rash and gave me some gel to put on it and said to stay out of the heat. It was our last day anyway so this was not a problem for me.  Nothing changed much, we flew back to the UK , went shopping the next day in our town and drifted off to sleep that night. I woke up on a Saturday morning and there was a BIG CHANGE - looked at my left arm- it was covered in large - I mean - HUGE blisters!!  They sort of grew...

I wanted to start this blog with an expression of thanks to my healthcare team. In all my experiences of my skin condition one of the main things that has kept me going and kept me calm is the caring, professional and calm approach of my family Doctor.  Looking back I feel it is so important to be able to talk with your family doctor, to be honest how you feel, for them to be honest with you, and to feel able to ask questions, discuss concerns, for them to listen to you  and to feel like you really are a partner in your care and treatment.  I was so lucky to have that communication with my Doctor. later I will share some of the most useful questions I asked and the questions I was asked to help to advise me and help me to recover and deal with my skin condition.  For now I just wanted to say thank you to my doctors-they know who they are- for sticking with me through all of this quite horrible condition, for answering my many queries and questions and helping m...